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Patient Registries

Patient registries can improve healthcare quality, drive novel clinical research, and serve as data-centric hubs for communities of healthcare professionals.

With these opportunities comes the complexities of planning, designing, building, and managing robust, far-reaching registry programs. Breakthrough Healthcare provides a suite of professional services that support all phases of the patient registry lifecycle. We leverage lessons learned from our work with registries across healthcare organizations to deliver services that are proven to make patient registries a success.

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Registry Business Services

Our team provides end-to-end registry business planning and management services, including market assessments and business cases, business plan and strategy development, budgeting, technology planning, corporate sponsorship program design, and operational model development.

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Clinical Workflow Analysis

Without integrated considerations for clinical workflow, patient registries can fail to attract users and frustrate current participants. We work with clinical experts to discover the day-to-day requirements and challenges of clinical practice, and incorporate these findings into registry design and planning.

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Clinical Dataset & Measure Development

We design datasets and measures that balance clinical rigor with day-to-day practice considerations. Using our Breakthrough Metadata™ platform, we work collaboratively with your team and clinical experts to ensure your clinical content is aligned with your current and future goals.

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Registry Platform Design

We work side-by-side with your technology team to create reports, dashboards, workflows, and supporting tools that will drive the use of your registry and deliver value to your program participants.


Real World Registry Expertise

Our team members have worked with patient registries across organizations for 20 years, as clinical designers, program managers, business consultants, and technology providers. Some of the registries our team members have worked with include:

  • American College of Cardiology National Cardiovascular Data Registries

  • American Gastroenterological Association Digestive Health Outcomes Registry

  • American Gastroenterological Association Digestive Health Recognition Programs

  • AAAAI Allergy, Asthma and Immunology Quality Clinical Data Registry

  • American Academy of Hospice and Palliative Medicine Palliative Care Quality Collaborative

  • American Optometric Association Measures and Outcomes Registry (MORE)

  • American Psychiatric Association PsychPRO Registry

  • American Society for Clinical Pathology National Pathology Quality Registry

  • American Society of Hematology Research Collaborative Data Hub

  • American Urogynecologic Society AQUIRE Registry

  • National Committee for Quality Assurance Physician Recognition Programs

  • Virtual Pediatric Intensive Care Unit (VPICU)